Consumer Reports supports A.B. 4983/S. 158, consumer health privacy legislation that would extend to New York consumers important new protections relating to their personal health data, including prohibitions against processing consumer health data for secondary purposes without affirmative consent, a ban on data sales and sharing, the right to know the personal health data companies have collected about them and the right to delete that information.
In particular, we appreciate that the bill includes:
- A strong definition of regulated health information;
- Restrictions on processing regulated health information without consent and an outright prohibition on sales of this information; and
- Meaningful non-discrimination provisions.
To read the full letter, please see the attached PDF.